Post Thrombotic or Post Phlebitic Syndrome

Disability and DVT, My Treatment Add comments
Jan 102009

I’ve started a new category tonight because this is something I live with everyday and cope with a little less every night.  To get things going, I thought I would try and throw some light on what this actually is.  The problem is, there is not much available in the places most people would start to look.

I’ve collected some material over the past few years but most of it tends to be rather complicated medical stuff or else it simply re-states what someone else has written before.

For starters, here’s the link to the Wikipedia page.  You’ll note that it doesn’t say very much!

http://en.wikipedia.org/wiki/Post-phlebitic_syndrome

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  • Reedo
    I have this too and live with it every day (leg stiff at the end of every day) and always worry about getting another DVT.
  • Jonathan
    I stumbled across your post while researching for an impending worker's comp case. I had an on the job accident while working for the US Government abroad in 1993; torn Achilles tendon, that progressed to DVT, PE, Coumadin toxicity, massive hemorrhaging, Hepatotoxicity and PTS. I've been crippled with arthritic symptoms, yearly bouts of pneumonia, advanced PTS, and severely reduced hearing acuity as a result of an intracranial hemorrhage since 1994. I was 37 years old at the time of the accident and played league rugby the summer before the accident and was in TOP physical condition. After 16 years the insurance company regulating my case is saying that all the physical symptoms have nothing to do with the accident and are the result of 'advancing age'; I'm now 54. Insurance in the USA with a 'pre-existing' condition? I don't think the yearly 12 hour flights to see insurance company doctors have helped the situation either. I desperately need a 'M.D. Thrombosis/Overcoagulation and its extended affects Specialist' who can examine the case to help me do battle. Any suggestions?
  • Hi Jonathan,

    I was involved in a compensation case here in Scotland following my DVT but I'm not sure that the details would be of benefit to you. My legal team requested an expert opinion from PROFESSOR C. VAUGHAN RUCKLEY. Consultant Surgeon and Emeritus Professor of Vascular Surgery, University of Edinburgh. I've just Googled him and there is plenty of information available.

    Both Prof. Ruckley and my legal team were based in Edinburgh (Scotland) and I thing they had worked together before.

    Whether or not this is useful to you, I do wish you luck with your fight. If you think I can be of any assistance to you in the future, please don't hesitate to ask.

    Jamie.
  • Hi Reedo,

    Thanks for getting in touch. I've been told I'll be on Warfarin for the rest of my life which takes away some of the worry about recurrance. It does still worry me though, so I prefer not to take risks. For instance, I've not been on a plane for quite a few years!

    Please keep in touch, I've been struggling to find a source of support that is UK based. It would be nice to encourage a few people with similar experiences to join us!

    Thanks,

    Jamie.
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